On Rare Disease Day, we want to shine a spotlight on the impact FSU Credit Union members made with finding a cure for Fanconi Anemia by partnering with the Kidz1stFund. Together, we raised and donated $26,640 toward the cause for 2017!
Over the past four years, we’ve donated more than $100,000, which makes FSU Credit Union the second-highest, all-time donor to the Kidz1stFund! That’s HUGE, and we’d like to thank every FSU Credit Union member who took out a loan this past fall through our “Borrow 4 Less – Give Back More” program or used the Skip-a-Pay program. It this kind of widespread support that gets us closer to finding a cure for Fanconi Anemia.
Since we’re all in this together, we wanted to announce this milestone on Rare Disease Day and are honored to support such a worthy cause. This is great example of how FSU Credit Union and its members are positively impacting lives for generations to come.
Fanconi anemia is a relatively uncommon disease that leads to bone marrow failure in 1 of every 131,000 people in the U.S. This inherited, genetic condition affects males, females and all ethnic groups equally. Simply put, FA does not discriminate.
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases. (Courtesy of rarediseaseday.org)
Building awareness of rare diseases is so important because 1 in 20 people will live with a rare disease at some point in their life. Despite this, there is no cure for the majority of rare diseases and many go undiagnosed. Rare Disease Day improves knowledge amongst the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare diseases.
The campaign started as a European event and has progressively become a world phenomenon, with the USA joining in 2009 and participation in 94 countries all over the world in 2017. Hundreds of cities continue to take part in Rare Disease Day, which is always slated on the last day of February each year.